CEO Blog: Dear Everybody campaign challenges perceptions about disability

Nobody wants to see their child, sibling or friend left out or picked on for being themselves.

Yet kids with disabilities often face whispers, staring, exclusion, name-calling and bullying.

Young people with disabilities are two to three times more likely to be bullied than kids without disabilities and one study found that 53 per cent of kids with a disability have zero or only one close friend.

The shadow of disability stigma doesn’t disappear as young people with disabilities get older.

Median incomes for Canadians with disabilities are 34 per cent (almost $10,000) less than the incomes of Canadians without disabilities.

Many individuals with a disability who want to work face barriers to employment: one-third say they have been denied a job because of their disability, and 24 per cent say they have been denied a job interview.

This data, as well as the stories we hear first-hand from the thousands of children, youth and families served by Holland Bloorview Kids Rehabilitation Hospital, are the reason that we have recently launched the second year of our Dear Everybody campaign.

Dear Everybody is a national movement created in partnership with kids and youth to raise awareness about disability stigma.

Disability stigma is the negative and unfair beliefs or assumptions we make about people who have disabilities. And stigma has an impact on almost every facet of life: friendships, school, employment, law, policy and more.

So the time for change is now.

Read my full column on Toronto.com.

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Julia
@Hanigsberg

CEO Blog: Harnessing creativity and risk-taking for impact

The stereotype we are all familiar with is that hospitals are risk-averse and rigid. Indeed, when entrusted with individuals’ health and safety, our appetite for risk is low. Further, healthcare is one of the most complex systems in existence, more complex than banking, manufacturing, or education. Why? At least in part because the various combinations of care, activities, events, interactions and outcomes are virtually infinite (Braithwaite, J., BMJ (2018;361:k2014)).

So how do we get past our risk-averse tendencies and bring about change amid this complexity? A big part of the answer is embracing an innovative mindset. The challenge is how do we, as health care leaders, create an environment where the amazing ideas our staff, physicians, clients, and families have are harnessed into actions that make a positive impact and help us more effectively deploy our resources?

Read my full column in the August issue of Hospital News.

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Julia
@Hanigsberg

CEO Blog: Danforth Strong, Toronto Strong

This week has been a tough one with the unthinkable shooting on the Danforth, compounded by equally heartbreaking gun violence across so many of our neighbourhoods and the van attack only a couple of months ago. Learning that one of the victims, 18-year-old Reese Fallon, was going to study nursing at university in the fall hits many of us at Holland Bloorview particularly hard, as did the news that victim Julianna Kozis was only 10 years old. We will be flying our flag at half-mast over the next week.

This week, and every week, I encourage all of our Holland Bloorview staff members to check in with colleagues and teams to offer support and remind each other that immediate mental health resources are always available through our Employee and Family Assistance Program. Our program provider, Morneau Shepell, has also set up a crisis support line for anyone in the community in need of emotional support in relation to this event. The number is 1-844-751-2133 and is open 24/7.

Empathy and kindness are top-of-mind as we think about all of the many families, neighbours and friends touched by this tragedy. We are so fortunate in our city to have such incredible first responders and colleagues in trauma centres and communities that rally in times of deep need. We continue to prove over and over again how resilient and compassionate we are in this city.

We will always be Danforth Strong, Toronto Strong.

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Julia
@Hanigsberg

CEO Blog: New Strategy. New Challenges. New Leadership.

It’s the time of year when people tend to start asking each other what their summer vacation plans are. Whenever I’m asked that these days my answer is the same “I’m searching for 3 new people to join my leadership team – that’s what I’m up to this summer!” I say it with excitement in my voice and a skip in my step because I see change as opportunity and I’m eager to welcome extraordinary new people to Holland Bloorview Kids Rehabilitation Hospital as vice president people and culture, vice president corporate innovation and services and executive lead equity, diversity and inclusion. How lucky will those ultimately successful candidates be to join this superb organization.

However, recently I was challenged. More or less what was put to me is this: we have waitlists; we could use additional clinicians and other frontline staff; why are we spending scarce resources on these roles? I’ve got to admit my first response was defensive. But then I stopped and thought, good questions… and ones I too had considered before moving forward.

I fundamentally believe that we have important and urgent work to do investing in people and culture, in innovating in our corporate services and operations, and in equity, diversity and inclusion in order to achieve the goals of our No Boundaries strategy of which we are so proud. We are poised for new accomplishments on a foundation of excellence including meeting 100% of the standards on our Accreditation Canada quality survey this year and being awarded Exemplary Standing; being a leading patient-centred care organization with our recent Merck Patients First Award; 8 years as a GTA Best Employer; a Corman Award for compassionate care; I could go on and on.

We don’t get to this terrific place without intention and investment in people leadership. Today more than ever before we need to invest in bold new leadership, precisely because of the challenges to access to services, the new more complex clients we service and the diversity of challenges clients and families face.

We need leadership that will give each individual confidence that she or he can provide reliable, consistent high quality care; leadership to ensure we are a learning organization; leadership enabling and supporting every member of our team to bring their whole selves to work and to do their best work every day safely and with joy; leadership to reduce disparities in access through targeted equity and inclusion work grounded in evidence including responding to the healthcare recommendations of the Truth and Reconciliation Commission; leadership for effectiveness and innovation to all that we do including in technology and resources.

With the individuals that are members of our search committees, front line clinicians, nurses, doctors, managers, educators and administrative leaders, I promise that we will find amazing people for these roles that will help each of us to do the work that matters most to us, for the most meaningful and healthy futures for all children, youth and families.

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Julia
@Hanigsberg

CEO Blog: Finding Our Voices

The other evening I heard Mark Sakamoto give a reading from his beautiful book Forgiveness, this year’s Canada Reads winner. Mark was Holland Bloorview Kids Rehabilitation Hospital’s guest at an event where we were showcasing the work of the researchers in the Bloorview Research Institute and sharing our plans for the largest growth in our research history.

Mark drew a parallel between his grandmother’s lost voice because of Canada’s Japanese internment during the Second World War, to the missing voices of children with disabilities. Most literally, this parallel relates to children whose physical disabilities prevent them from speaking — the lifetime passion of our VP Research Dr Tom Chau (see a recent interview on the occasion of his winning a Governor General’s Innovation Award here).

Speech and having a voice is also what drives Dr Deryk Beal whose research in neuromodulation is leading the way in the development of new treatments administering very small electric or magnetic energy pulses to specific parts of the brain, triggering pathways that can potentially accelerate learning in areas such as language.

The voices of young people with disabilities are missing in less literal ways too: frequently from election priorities, from social policy, from the priorities of schools and school boards, from the ranks of employers and corporate boardrooms. This is changing, and Holland Bloorview is part of that change through policy impacts, awareness raising and cutting edge research relating to barriers to employment among many other activities. With a vision of the most meaningful and healthy futures for all children, youth and families,  and a mission that includes social justice for people with disabilities, change in the world is as important to us as is extraordinary care, educating the next generation of doctors and clinicians, and transformational research.

I also want every member of the Holland Bloorview team to have a voice. Our No Boundaries strategy requires that courage and opportunity and we need to do what it takes to ensure everybody feels safe to have their own unique and diverse voice. That’s why Pride celebrations are important to Holland Bloorview and why I am proud of the many things that Holland Bloorview will be doing to recognize Pride in our walls and beyond them this June and why I’m equally excited to launch a search for an executive leader for equity, diversity and inclusion in the coming weeks.

May is speech and hearing month. Be a part of ensuring that all voices are heard.

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Julia
@Hanigsberg

CEO Blog: Toronto, April 23, 2018

This week as Torontonians we mourn lost lives and wish for speedy and complete recoveries for the injured in the tragic incident at Yonge and Finch. Events similar to this one have happened around the globe and with compassion we have expressed condolences to other cities and countries. Yesterday and today we receive these thoughts and words as our global community reaches out in solidarity to Torontonians and Canadians. I am grateful for the extraordinary work of first responders and of our colleague neighbours at Sunnybrook Health Sciences Centre and other local hospitals. We are fortunate to have such excellent and well-prepared healthcare colleagues and a system able to respond when tragically called upon. For Holland Bloorview employees and their families there is our Employee and Family Assistance Program (EFAP) for support for those who need it and I have encouraged our team to reach out to managers and human resources as needed. For our clients and families we have care teams and our client and family integrated care team and family leadership program today and every day.

We are indeed Toronto Strong.

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Julia
@Hanigsberg

CEO Blog: Working to knock down boundaries every day

One year ago we completed our strategic plan, No Boundaries. Our strategy is to put all of our energy towards enabling children and families to have the most meaningful and healthy futures by personalizing pathways, discovering for action and connecting the systems in which we work. We do this every day throughout our organization, at the point of care, in our teams, as we plan, through our budgets and as we engage our community, funders and donors for support. No Boundaries empowers each of us to make change every day.

No one has a monopoly on good ideas and that’s why we created the No Boundaries Fund to encourage all members of our Holland Bloorview team to launch ideas that bring No Boundaries to life and the No Boundaries Strategy Council to maintain our momentum. Great ideas happen anywhere, anytime and from any floor or department of the hospital. The Strategy Council had its first meeting last week. Our council includes “alumni” (former clients and youth leaders), physicians, frontline staff, managers, researchers, family leaders, members of health disciplines, of the Senior Management Team and includes 6 members who self-nominated. The Council will keep us honest and on track to keep the energy of No Boundaries alive at Holland Bloorview and they are ambassadors for our strategy. Have a question, comment or idea for the council? Reach out to Sean Peacocke, Holland Bloorview’s Manager of Strategy.

At this first meeting, Council was clear that we need to share more stories of where No Boundaries is taking hold and how we are making progress on our plan. For example,

• solution focused coaching training is spreading, giving our team members the skills to understand what matters most to clients and families and put that in place through integrated and coordinated care plans to enable personalized pathways;
• we’ve established a new director of commercialization role to enable access to new technology developed out of our research institute and to help scientists find industry partners;
• we worked with clinicians, clients and families to develop a pilot for extended hours of service in some ambulatory services;
• we used design-thinking methodology supported by our Centre for Leadership in Innovation to develop 2 new measures for inclusion in this year’s Quality Improvement Plan;
• we are upping our digital healthcare game by enabling clinicians to have virtual visits with clients through the Ontario Telehealth Network
• we’ve completed mapping of the various ways that our clients first make contact with Holland Bloorview to develop plans to enhance the first point of contact and identify ways that we can make the time between referral and service meaningful, i.e. providing access to helpful resources immediately for all clients, such a great education sessions for caregivers or group workshops to address immediate concerns

No Boundaries Funds are granted up to a maximum of $5,000 per request, with a total of $50,000 of donor funding available in 2018-19. With No Boundaries Fund grants staff can address pressing needs, identify new and emerging challenges and take advantage of opportunities as they arise.

Last year the No Boundaries Fund enabled a number of great projects including:

• a workshop to teach caregivers how to uses infographics to share child/family stories
  
• behavioral and sensory workshops for caregivers to help them with their most pressing needs
• “Saturday Fun Night” giving respite to families with a fun evening for clients and siblings supported by nursing and therapeutic recreation
• phone charging station (coming soon!)
• youth video feedback corner (coming soon!)
• a parent group to promote self-empathy and resilience in a supportive environment where parents felt safe sharing stories
• an app designed to use the power of artificial intelligence and crowdsourcing to help kids and families navigate services and programs (under development)

For this year’s No Boundaries Fund grant requests can be made from April 1, 2018 to June 30, 2018. If you are a member of the Holland Bloorview team, email noboundariesfund@hollandbloorview.ca to submit your request. Share your idea with me for an opportunity to bring it to life.

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Julia
@Hanigsberg