CEO Blog: Working to knock down boundaries every day

Do you have a bright idea?

One year ago we completed our strategic plan, No Boundaries. Our strategy is to put all of our energy towards enabling children and families to have the most meaningful and healthy futures by personalizing pathways, discovering for action and connecting the systems in which we work. We do this every day throughout our organization, at the point of care, in our teams, as we plan, through our budgets and as we engage our community, funders and donors for support. No Boundaries empowers each of us to make change every day.

No one has a monopoly on good ideas and that’s why we created the No Boundaries Fund to encourage all members of our Holland Bloorview team to launch ideas that bring No Boundaries to life and the No Boundaries Strategy Council to maintain our momentum. Great ideas happen anywhere, anytime and from any floor or department of the hospital. The Strategy Council had its first meeting last week. Our council includes “alumni” (former clients and youth leaders), physicians, frontline staff, managers, researchers, family leaders, members of health disciplines, of the Senior Management Team and includes 6 members who self-nominated. The Council will keep us honest and on track to keep the energy of No Boundaries alive at Holland Bloorview and they are ambassadors for our strategy. Have a question, comment or idea for the council? Reach out to Sean Peacocke, Holland Bloorview’s Manager of Strategy.

At this first meeting, Council was clear that we need to share more stories of where No Boundaries is taking hold and how we are making progress on our plan. For example,

  • solution focused coaching training is spreading, giving our team members the skills to understand what matters most to clients and families and put that in place through integrated and coordinated care plans to enable personalized pathways;
  • we’ve established a new director of commercialization role to enable access to new technology developed out of our research institute and to help scientists find industry partners;
  • we worked with clinicians, clients and families to develop a pilot for extended hours of service in some ambulatory services;
  • we used design-thinking methodology supported by our Centre for Leadership in Innovation to develop 2 new measures for inclusion in this year’s Quality Improvement Plan;
  • we are upping our digital healthcare game by enabling clinicians to have virtual visits with clients through the Ontario Telehealth Network
  • we’ve completed mapping of the various ways that our clients first make contact with Holland Bloorview to develop plans to enhance the first point of contact and identify ways that we can make the time between referral and service meaningful, i.e. providing access to helpful resources immediately for all clients, such a great education sessions for caregivers or group workshops to address immediate concerns

No Boundaries Funds are granted up to a maximum of $5,000 per request, with a total of $50,000 of donor funding available in 2018-19. With No Boundaries Fund grants staff can address pressing needs, identify new and emerging challenges and take advantage of opportunities as they arise.

Last year the No Boundaries Fund enabled a number of great projects including:

  • a workshop to teach caregivers how to uses infographics to share child/family stories
  • behavioral and sensory workshops for caregivers to help them with their most pressing needs
  • “Saturday Fun Night” giving respite to families with a fun evening for clients and siblings supported by nursing and therapeutic recreation
  • phone charging station (coming soon!)
  • youth video feedback corner (coming soon!)
  • a parent group to promote self-empathy and resilience in a supportive environment where parents felt safe sharing stories
  • an app designed to use the power of artificial intelligence and crowdsourcing to help kids and families navigate services and programs (under development)

For this year’s No Boundaries Fund grant requests can be made from April 1, 2018 to June 30, 2018. If you are a member of the Holland Bloorview team, email to submit your request. Share your idea with me for an opportunity to bring it to life.



CEO Blog: HB FIRST® Robotics

In October 2015 Holland Bloorview launched the first program with a focus on STEM (Science, Technology, Engineering and Math) in the GTA for kids with disabilities, in partnership with FIRST® Robotics Canada. The HB FIRST® Robotics program began as a pilot program and has since expanded to offer classes in the winter, spring and fall for outpatient clients, from ages six to 14. To date, over 250 participants have registered in the program and taken away decision-making, problem-solving and teamwork skills through an innovative and creative learning experience that sparks their interest in STEM.

I first learned about FIRST® Robotics Canada when my son was a little kid and participated in FIRST® LEGO League. I was just blown away when I went to watch the first competition he participated in. The kids were motivated, the whole program taught skills far beyond the robot including communication and team work, and it was really fun. When I was at Ryerson University I worked with FIRST® Robotics Canada CEO Mark Breadner to bring the GTA FIRST® Robotics Competition to Ryerson’s Mattamy Athletic Centre and to bring Ryerson in as a sponsor.

Shortly after I became CEO of Holland Bloorview Mark came to visit me here and we thought there could be an amazing opportunity to bring FIRST® Robotics to a children’s hospital and particularly into the lives of children with disabilities. Ever since, FIRST® Robotics Canada has been an exceptional partner and is deeply aligned to our commitment to equity, diversity and inclusion and meaningful lives and futures for kids with disabilities. The FIRST® folks even have a Capes for Kids team!

This month I’m interviewing Lynn Rampertab, the robotics coordinator at Holland Bloorview, who leads the HB FIRST® Robotics program. Lynn has been with FIRST® Robotics Canada since 2008 specializing in STEM Education. She joined Holland Bloorview in 2015 to break ground on the HB FIRST® Robotics partnership.

Lynn Rampertab with a LEGO robot creation.

What has been the response from kids who have participated in the program?

Some of the best feedback I’ve heard comes directly from our participants and their families. Participants have fun in the program and for some it’s given them an opportunity to explore their interest in computers and programming. Parents love that their kids are meaningfully engaged and eager to learn something new.

From my perspective, watching children arrive to their session with enthusiasm and excitement is always rewarding.


From your perspective, how do the kids benefit from learning about STEM and robotics?

Building literacy in STEM is a necessity in today’s technology enriched environment. STEM competence and confidence creates pathways to well-paying jobs and entrepreneurial opportunities in the fastest-growing fields, creating the potential for young people to achieve purposeful and prosperous lives.  Often these opportunities don’t exist for children with disabilities. Exposing children with disabilities to STEM and robotics opens up a world of possibilities they may not have considered before.

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Kids in the Intermediate HB FIRST® Robotics program learn concepts they can apply to  their designs.


How did the partnership between FIRST® Robotics Canada and Holland Bloorview begin?

In the summer of 2015, FIRST® Robotics Canada was invited to meet with a team from Holland Bloorview to look at how we could collaborate on a program that promotes STEM-interest amongst children with disabilities. The FIRST® Robotics Canada team worked  very closely with the multidisciplinary staff at Holland Bloorview to ensure we built in adaptive features that removed the barriers to access while maintaining a high degree of learning in both building and programming robots.

FIRST® Robotics Canada developed the curriculum, provided expert teaching leads to facilitate the classes and recruited volunteers for the program. Holland Bloorview created the adaptive features and helps to recruit additional volunteers, when needed.

A great example of this collaboration is the Communicator 5 program, which allows a child that uses a hummer switch to interface with our LabView-based computer program. We have also created digital files that allow children to build virtually instead of physically and use hand-over-hand techniques, where a child’s hand rests on top of a volunteer’s while they perform activities, among other accessibility features to further enhance participation.


How did you get involved with FIRST® Robotics Canada and end up leading the program?

I started in FIRST® Robotics Canada as a parent who watched my own children find something they were passionate about while learning real world skills like problem solving, critical thinking, teamwork, communication, presentation and time management. The turning point for me was watching my children help other teams at a competition even though they were competing against them.  It was inspiring to see.  As my children become more immersed within the program, I became a volunteer to stay connected to them and share in an activity that they felt passionate about.

After a couple of years, I was offered a position and I jumped at the opportunity to continue working to spread the principles of this program beyond my own community.  FIRST® Robotics Canada gave me the opportunity to make a real difference and challenged me with many new initiatives. My work with FIRST® Robotics Canada led me to Holland Bloorview.


What are the key factors that have made the program a success?

It was important to make sure the HB FIRST® Robotics program included STEM concepts coupled with meaningful participation and real world skill building opportunities. We’ve also embedded a rigorous research and evaluation component in the program to help ensure that we are meeting the needs of children and youth moving forward.

The success of this program has really been threefold.  The partnership Holland Bloorview has forged with FIRST® Robotics Canada, the sponsorship we have received from Capital One and Argosy Foundation and the access to passionate staff from multidisciplinary backgrounds have all been key ingredients to our success.

A child in the Junior program interacts with a volunteer at a table full of colourful LEGO pieces.


What’s the one thing about developing or running the program that has been the most challenging?

One of the biggest challenges I had at the onset of developing this program was my own mindset.  I had never worked with children with disabilities and had no idea what to expect.  I found that when I shed my own biases and recognized that each child learns in their own unique way, it opened my mind up to new possibilities. Then we were able to create a program that meets all our goals of fostering life skills, self-confidence, communication and social skills, while increasing interest in STEM.

As this program moves forward, we continue to develop lessons that are focused on computer programming and building concepts and we work with other Holland Bloorview staff to make sure they are accessible.  We work with each child and their family to develop a unique learning strategy that allows them to participate meaningful both with the program content and their peers.


Talk about the plans to offer the program at other hospitals and organizations for kids with disabilities

In a concerted effort to connect the system, Holland Bloorview has linked with Children’s Treatment Centres to advance collaborative partnerships and fill gaps so clients across Ontario can participate in robotics programming.  Examples of these partnerships include KidsAbility in Cambridge, ErinoakKids in the GTA and Grandview Children’s Centre in Oshawa who all have plans to run their first pilot in the fall of 2018.



CEO blog: Get Up and Go

Last month during National Pain Awareness Week we welcomed young people, families, pain clinicians from across the province from the Pediatric Chronic Pain Network, representatives of the Ministry of Health and Long-Term Care and Dr. Hoskins’ office, and the teams from Holland Bloorview Kids Rehabilitation Hospital and SickKids to celebrate the success of the first two years of the Get Up and Go: Persistent Pediatric Pain Service, a truly innovative and life-changing program for young people living with chronic pain and a first of its kind in Canada.

Persistent pain among Canadian children is a growing area of concern. A recent systematic review of prevalence studies found that up to 38 per cent of children and adolescents will suffer from chronic pain, and up to 8 per cent of these children will develop a significant pain-related disability. This can lead to long-term opioid use, social isolation, declining attendance at school, sleep and mood disruptions, and emotional and financial stress for families.

This is why the Get Up and Go program is so critical. The program helps young people and their families, who experience persistent pain and struggle with many of these issues, get back to living their best and healthiest lives.

This was a need that was identified by staff and families at Holland Bloorview and SickKids. The Get Up and Go program is an excellent example of how this kind of partnership can work and of course, it couldn’t have happened without the support of the Ministry of Health and Long-Term Care.

The four-week intensive program is unique in Canada because it offers both an inpatient and outpatient component. Participants spend the first two weeks as inpatients at Holland Bloorview in a highly structured rehabilitation program, followed by a two-week outpatient program that is designed to support the transition back to their home and community.

The multi-disciplinary team is led by a physician and nurse practitioner, and includes psychiatry, psychology, physiotherapy, occupational therapy, social work, nursing, dietary, pharmacy and therapeutic recreation services drawn from both SickKids and Holland Bloorview.

Staci Berman was one of the first participants in the program and shared her story of being injured playing basketball. As Staci put it: “My pain latched onto me and became the newest part of me. This was the part that kept me bed ridden, unable to go to school for 40 days, 2 years of my childhood, taken over by my pain.” In describing the impact of Get Up and Go, Staci reflected:

“When I got to Holland Bloorview I had lost all muscle in my right leg and I could barely walk. We persevered tirelessly to rebuild the strength and flexibility in my leg and body overall. …The Get Up and Go program has rebuilt me not only physically, but mentally. They have given me back the confidence that I lost all those years ago along with everything else that I lost from the pain.”

Staci Berman, Get Up and Go client, and her mother, Shelley Berman, at the Get Up and Go Celebration Event.

Jodi Seguin’s daughter Lauryn was another client in the program. Jodi reflected on the impact not only on her daughter, but on the whole family:

“What I didn’t know going in to this program was that as much as this team was going to help my daughter, they were also going to help my entire family. My husband and I were involved in group, and one-on-one sessions, we were taught about mindfulness (not for Lauryn but for us!), we were encouraged to share our frustrations and fears, and we had countless opportunities to talk about the stress and worry we had experienced over the last year. We were also given a toolkit full of ways to help Lauryn when she returned home.”

(From L-R) Jodi Seguin, mother of Get Up and Go client; Susie Mallory, therapeutic recreation specialist with the program; and Lauryn Seguin, former client with the program, reunite at the celebration event.

This partnership has continued to advance pediatric pain management in for Ontario’s children. As Dr. Mike Apkon, CEO of SickKids, reflected in his remarks: “We continue to build on our long and close relationship with Holland Bloorview because we know the best outcomes for our patients and families happen when there is a coordinated approach across different health-care providers. Our Kids Health Alliance partnership, which we launched earlier this year [along with CHEO-OCTC], arose from the need to better serve kids and their families that have to navigate a complex network of providers.”

With the creation of Get Up and Go in 2015, youth no longer needed to travel to the United States to receive this type of intensive and highly-specialized service, saving the province up to $2 million dollars annually. This is the right care at the right place for the right price.

What matters the most, and the reason our teams get out of bed each morning, is the impact on the lives of young people and families. No one can say it better than a mom. As Jodi Seguin said of her daughter Lauryn’s journey:

“Lauryn couldn’t walk when she came [to Holland Bloorview and] only 3 weeks [later she was] running. The strides she was making, on the pavement, and in this program were mind blowing and it was all due to a small group of incredibly dedicated people who were with her (and us) every step of the way. … The girl who hobbled in to the hospital, on her first day, only 4 short weeks prior, sprinted out the door on her last day.”

This is why we get out of bed every morning. Congratulations to the Get Up and Go Team and all the clients and their families.

(From L-R) The Hospital for Sick Children (SickKids) President and CEO Dr. Mike Apkon; Shelley Berman; Staci Berman; Susie Mallory; Holland Bloorview Kids Rehabilitation Hospital President and CEO Julia Hanigsberg; Lauryn Seguin; and  Jodi Seguin.



CEO blog: Celebration of life

Holland Bloorview families and staff came together for special celebration of life in the hospital’s Spiral Garden this summer to remember children who have died. Social worker Barbara Germon helped families plan the event. Barbara, who has been at the hospital for 32 years and currently works in our child development program, shares some of her thoughts about the celebration and coming to terms with grief.

On December 7, Holland Bloorview is hosting a workshop titled “Coping with the Loss of your Child at Different Stages.” Information about this event is available on the hospital’s website. The next celebration of life event at Holland Bloorview is June 9, 2018.


Can you describe what it was like to be at the celebration of life event?

The entire event was very positive and uplifting. You could see it was emotional for many who attended, but also a healing experience. The sun was shining and there was a lovely breeze. There was a staff musician playing guitar. We called the names of all of the children and then followed the parents to dedicate a ceramic butterfly to all children past and present. The butterfly was designed by an artist who works at the hospital. It was a very beautiful and moving experience. Several children, including brothers and sisters, and grandparents and other relatives participated.


What was your role in the event?

I led the committee which is made up of three parents and three staff. I wanted to make sure the day evolved and the outcome was what the committee envisioned it to be. I also had the honor of reading the names of all the children and reconnecting with the families.

 Social worker Barbara Germon speaks at the celebration of life event this past summer.

Can you talk about the process of partnering with families and planning the event?

The experience of working on the committee with the parents was very inspiring for me. I really enjoyed listening to the parents and learning about what would be most meaningful for them in creating this day.

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Family leader Bruno Geremia (second from right) helped lead the celebration of life event and attended with members of his family and Holland Bloorview staff. Read more about Bruno in the hospital’s BLOOM blog.

I know the event is important for families – can you talk about the significance of the event for staff members?

It offered staff who attended a way to reconnect with parents and honor the children they grew to know and love.  There are some families staff hadn’t seen since the child passed away. It is a loss for professionals when a child dies. A memorial celebration is part of their grief process and how they come to terms with it.


As a social worker, what have you learned over the years about supporting families during end of life care and the grieving process?

Families of children with special needs feel a great sense of support from other families. They also feel staff who knew their child understand their journey. Some families may feel friends and family are unable to fully relate to their situation or know how to offer support, especially if the child was medically fragile. As a result, when a child dies, parents may feel more isolated. This is termed a type of “disenfranchised loss.”  That is why it is so important that we take extra care to support families of children with special needs and help them stay connected to others who have walked a similar path.

I learned that grief is not linear and there is no set path. People move in and out of grief in their own unique way. It’s also important to particularly recognize fathers, as their grief can sometimes go unnoticed. Grief can take time and work and can catch people when they least expect it. It is very essential to support siblings as well. It is helpful for each family member to find a way to remember and honor their loved one and find meaning as they move forward.


What thoughts would you share with other clinicians if they are supporting families through this part of their journey?

It is not easy for us to talk about death. I think the more we are able to bring issues out in the open, the more comfortable we will be in our efforts to support families. When we talk about it we can feel more able to support each other and the families we work with.


Being a health-care provider can be emotionally challenging, how do you take care of your own mental health and wellbeing?

I believe strongly in the value of reflective practice. We need to acknowledge our own humanity so that we can support others in their journey. Self-care is a key ingredient to this process. I have to reflect on my feelings all of the time. When I feel I am overwhelmed, I gain strength from friends and family and take time for myself to refuel. It is important that we take time if we are going to support others.


How has Holland Bloorview’s approach to supporting families during end of life care and the grieving process changed over the years?

I think end of life care and grieving is starting to be discussed more. We are acknowledging this as a part of our work here. Some of our clients have complex needs. I am part of a Centres for Leadership group that is also looking at advanced care planning and starting these conversations with families before their child may become ill. We are starting to create a holistic approach to care and this means that sensitive issues can be discussed at every part of the journey.


What more can Holland Bloorview do to support families during end of life care and the grieving process?

We are hoping to provide more education to families and staff. We are also looking at different models of group support. Through advanced care planning we can open conversations earlier and begin to support families at all stages of the lifecycle. We want to everyone to feel more comfortable talking about grief. We hope families will feel that support is available if their child passes away.


What’s next for the celebration of life event?

We are hoping to have an annual event each June and we already have a date picked out for 2018. We are also planning an evening for families in December where we will be inviting a speaker to present on one of the many aspects of the grief journey. We have also talked about a coffee group to provide further support to families. The committee is discussing how we can provide more opportunities for siblings too.



CEO Blog: Accreditation 2017!

Accreditation blog
Inpatient care providers with a banner outlining some of our accreditation milestones to date

With less than two weeks to go until Holland Bloorview’s accreditation survey I couldn’t imagine a better topic to post a blog on for October.

What is accreditation?

Accreditation is a voluntary review process, including an onsite survey by health-care experts from Accreditation Canada. Accreditation is an opportunity for us to demonstrate how we provide excellent care by aligning quality and safety improvement initiatives with national standards and best practices. The survey team will be with us from Monday, October 16 to Thursday, October 19, 2017. Most importantly, accreditation is an opportunity to showcase our quality and safety excellence.

Accreditation Canada develops standards and required organizational practices. We see these as an opportunity to prioritize improvement initiatives across Holland Bloorview. We’ve been fortunate to have amazing leadership from staff and family leaders across six accreditation teams: Governance, Leadership, Medication Management, Infection Prevention and Control, Ambulatory Care, and Rehabilitation.

In addition, all of our family leaders involved in accreditation have come together in the Family Leader Accreditation Group which is the most visible symbol of the commitment we made in the No Boundaries strategic plan to evolve client-centred quality and safety. In the plan we say, “We will strive for the highest quality care and safety in everything we do – our quality and safety measures will reflect what children, youth and families truly value.”

What happens during the survey October 16-19, 2017?

The accreditation surveyors will meet with teams related to each of the standards all of which include family leaders. They’ll also meet with community and service partners, meet with a group of family leaders, conduct tracers and walk through our halls taking the opportunity to observe Holland Bloorview in action and to ask questions of any staff they encounter. This is such a great opportunity for all of us to voice our knowledge of and pride in the quality and safety practices at Holland Bloorview. For Holland Bloorview staff, there are great tips and tricks to help you feel ready for the survey week on our intranet site (viewfinder).

Why am I so confident?

Sometimes the count down to the accreditation survey can feel a bit nerve-wracking. Perhaps you’re thinking it sounds like cramming for a 4-day final exam! This isn’t how I view accreditation. Think instead about accreditation as one of the key ways we live our value, excellence (one of our 5 values along with courage and resilience; compassion; equity; and innovation) and how we connect what we do each and every day at Holland Bloorview to our new vision: The most meaningful and healthy futures for all children, youth and families. Accreditation is part of our commitment to continuous learning and continuous improvement. The survey isn’t about finding failure, it’s about sharing how we all contribute to a strong safety culture and doing it in a way that keeps children, youth and families at the heart of everything we do.

We’ve got this!



CEO Blog: It’s time to end the cycle of disability stigma

Imagine your wonderful child coming home every day from school and telling you she ate lunch alone because no one would sit with her. Why? Because she uses a wheelchair.

Imagine facing stares and whispering when going to the grocery store with your child or the clerk that doesn’t even try to understand your child’s speech and instead ignores them and talks to you.

For kids and youth with disabilities and their families, these are every day realities. Kids with disabilities want to be loved, appreciated, move, laugh, learn and play just like all kids do. But too often they’re hindered…not, as you might think, by their disability but by the actions, attitudes and beliefs of others, including their teachers, classmates, neighbours, even by their communities.

As a result, kids and youth with disabilities face far too many frustrating, heartbreaking and spirit-killing barriers – barriers caused by stigma.

They routinely face stares, whispers, name-calling, social exclusion, bullying and outright prejudice and discrimination.

It’s time to end the cycle of disability stigma and break down barriers and bias that hold kids and youth with disabilities back.

The urgency to shift thinking and attitudes becomes clear when you look at some alarming stats around disability:

  • 53 per cent of kids with a disability have zero or only one close friend.
  • Kids with disabilities are two to three times more likely to be bullied.
  • 25 per cent of kids with disabilities under 15 in Canada have unmet educational needs.

And the implications for the adults these kids will become are stark as well:

  • Only 49 per cent of Canadians with disabilities aged 25 to 64 are employed compared to 79 per cent for Canadians without a disability.
  • One-third of people with disabilities say they have been denied a job because of their disability.
  • Only 59% of Canadian youth with disabilities aged 18-21 attend post-secondary education compared to 72% of youth without a disability.

And we’re not talking about a small group. In Canada, there are 400,000 children and youth with disabilities. That’s the population of Halifax.

But go beyond stats and understand the pain, frustration and humiliation stigma causes.

Getting around in a wheelchair isn’t easy, but eating lunch alone at school every day really stings.

Putting on a prosthetic limb can be cumbersome, but hearing whispers or blatant name calling in the hallways or on the playground can be agony.

So too can never being invited to any birthday parties. Or not getting what you need to do your schoolwork, or being passed over for jobs that you know you could do with a few simple and inexpensive accommodations.

The time is now to make a change. We can’t do that unless we face up to our own bias, learn more and break the silence. Being anxious about offending or upsetting is not a good excuse to do nothing.

To get the conversation started, Holland Bloorview has launched a national public awareness movement called ‘Dear Everybody’ that’s focused on challenging and breaking down disability stigma and stereotypes.

Driving this movement are the words of kids and youth with disabilities, sharing their stories, their experiences and what they need the public to know to tackle the myths and misconceptions that exist about living with a disability.

Who better to raise issues people are too afraid to ask and put that information into the world, than those who experience the stigma every day?

Their messages are short and direct, such as:

“If someone’s voice is hard for you to understand, talk to them more. You will get better at it.”

“Not everyone in a wheelchair needs to be fixed.”

“If you’re inspired by someone with a disability, make sure they did something inspiring.”

For the kids having their experiences heard is empowering. For the public it’s enlightening.

To keep the conversations going, is a terrific source of information and resources, including stories of lived experiences, recommendations for teachers, employers, health-care providers and others that can be shared, start conversations and break down stigma. covers major issues such as employment, bullying, friendship, education and health care.

It also provides tools to educate the public about the role they play in building an inclusive and equitable society that includes young people with disabilities.

Health care professionals, government departments and other groups can research, discuss and analyze stigma, but it’s the kids who are experiencing it each day who can deliver the most powerful message for bringing about change.

There is no time to wait for a world that fully embraces disability as a valued form of diversity. Every one of us needs to be a catalyst for change, and the place to start is by amplifying the words of kids and youth with disabilities themselves.

Go to Share the letter broadly. Do something today that makes your piece of the world more inclusive. Tell someone about the resources online. We call this “Dear Everybody” because everybody needs to act. And that means you.



CEO blog: Advancing health equity – because it’s 2017

Last week, Holland Bloorview Kids Rehabilitation Hospital VP of Programs and Services, Diane Savage, and I were fortunate to be able to speak at the annual Pediatric Health Equity Collaborative conference, which was hosted by Holland Bloorview.

The Pediatric Health Equity Collaborative is an outgrowth of the Disparities Leadership Program at the Disparities Solutions Center at Massachusetts General Hospital. Five Holland Bloorview leaders attended the program in 2014 and 2015 to advance our work of equity, diversity and inclusion. The Collaborative works to establish best practices, lessons learned and recommendations with regard to race, ethnicity, language and other demographic data collection in pediatric care settings.

Among the organizations participating in the conference were: Disparities Solutions Center at Massachusetts General Hospital; Boston Children’s Hospital; Children’s Mercy Hospitals and Clinics; Holland Bloorview Kids Rehabilitation Hospital; Johns Hopkins Medicine; Monroe Carell Jr. Children’s Hospital at Vanderbilt; Sinai Health System (Toronto); Nationwide Children’s Hospital (Columbus, Ohio); Nemours Children’s Health System (Wilmington, Delaware); Seattle Children’s Hospital; The Hospital for Sick Children (SickKids) (Toronto); and St. Christopher’s Hospital for Children (Philadelphia, Pennsylvania).

At Holland Bloorview we are proud of our commitment to equity, diversity and inclusion. Over the last five years we have embedded structures such as our Equity, Diversity and Inclusion Steering Committee, our grass roots Equity, Diversity and Inclusion (EDI) Council and we have seen the evolution of our employee social committee which has taken leadership in hosting different celebrations of diversity in partnership with the EDI Council.

Holland Bloorview kicked off Pride month by re-creating the Pride flag to celebrate the full diversity and inclusion of people with diverse sexual orientations, gender identities and gender expressions within our hospital and the community.

Some of our key successes include:

  • an organizational equity survey of staff, the results of which help us prioritize and plan
  • our respect campaign to raise awareness and promote mutual understanding
  • an equity lens toolkit to bring EDI to the design of new services and organizational structures
  • health equity client and family surveys to understand who we serve and how care is experienced

And, as is always the case at Holland Bloorview, we have co-created these approaches with our child, youth and family leaders and our Client and Family Integrated Care team.

We know our communities at Holland Bloorview are diverse culturally, economically and geographically. Nearly 50% of the population of Toronto immigrated to Canada and nearly 50% are visible minorities. Toronto is also home to some of Canada’s largest urban indigenous communities. It is imperative we better understand the communities we serve or we will not be able to deliver the kind of care that creates the most meaningful and healthy futures for our children and youth, and the adults they will become.

As part of modeling the change we want to see in the health care, we also have to do better at reflecting the diversity of the people we serve with our own organization. Being reflective of those we serve can help advance better health outcomes, effective models of service delivery, efficiency, heightened care experiences and a just culture of acceptance where staff, clients and families feel safe bringing their whole selves to their place of care and work.

Data from our own health equity survey tells us that nearly 30% of families we serve earn less than $60,000 per year and nearly 16% earn less than $30,000. This is in a city that has the highest cost of living in the country with some of the most expensive housing costs in North America. With this knowledge, we are currently exploring how financial barriers impact how often families miss appointments. It is only through this work that we can identify effective solutions to ensure our clients and families are getting the care they need.

We have to do better for the children and youth we serve, regardless of their backgrounds. We have to create health, social and educational systems that work for everyone and we need to partner in ways that are innovative, fiscally responsible and gives us opportunities to learn and share what we know.

It’s 2017 and it is simply no longer acceptable for the social determinates of health to determine child and youth health outcomes.